Privacy Policy

Infinite Legacy Privacy Policy

Last Updated: November 18, 2024

PLEASE READ THIS POLICY CAREFULLY TO UNDERSTAND HOW WE TREAT YOUR PERSONAL INFORMATION AS WELL AS YOUR CHOICES AND RIGHTS. IF YOU DO NOT AGREE WITH THIS POLICY, YOU SHOULD NOT ACCESS OR USE THE SITE.

THE SITE IS INTENDED FOR INDIVIDUALS LOCATED IN THE UNITED STATES, AND IT IS NOT INTENDED FOR INDIVIDUALS LOCATED IN OTHER COUNTRIES.

This Privacy Policy (the “Policy”) describes our practices regarding your personal information when you visit our websites that link to this Policy, including www.infinitelegacy.org (collectively, the “Site”).

What Personal Information Do We Collect? We may collect the personal information described below:

Contact Information. When you visit our Site or contact us, we may collect your name, address, email address, and phone number.

Stories of Hope. If you share your story with us via the Site, in addition to your Contact Information, we will receive your story title, your status regarding a transplant and/or you or your family member’s donation story, the narrative information that you choose to share in your story, and your photograph.

Volunteer Registration. If you create an account as a prospective volunteer, we will collect your Contact Information, the username and password you create, and your social media usernames, date of birth, and preferred language. As a part of the registration, we will also ask you to provide information about your availability to volunteer, the types of events at which you would like to volunteer, your connection to donation and transplant, your employment status, your t-shirt size, your emergency contact information, your preferred hospital, and your COVID-19 vaccine status. You will also be required to sign various agreements and acknowledgements in order to be eligible to volunteer, and these will be presented to you for review.

Payment Information. If you make a donation online or purchase items from us, in addition to your Contact Information, we (or our third-party payment processor) will receive your PayPal username and transaction information.

Purchase Information. If you make a purchase from our Site, in addition to your Contact Information and your Payment Information, we will receive information about the products that you purchase and your shipping information.

Contact Aftercare Now. You can request to be contacted be our family services team via the Site, and we will receive your Contact Information as well as the reason for your request. A member of our team will respond by phone call or text messages.

Job Applicant Information. If you apply for a job via the Site, we will collect your Contact Information,  resume,  cover  letter,  and  information  about  your professional experience.

Communications and Inquiries. If you contact us, in addition to your Contact Information, we will receive any comments, content, questions, or other information that you choose to provide. For example,  if you request memorial cards from us, in addition to your Contact Information, we will receive the information that you share regarding the donor and any words of remembrance. In addition, if you submit the hospital services feeback form, we will receive the information you provide regarding the relevant hospital, unit, and referral as well as any information you share about your experience with us. Also, if you complete our donor family feedback survey, in addition to your Contact Information, we will receive information about your loved one and your experience and interactions with us.

Sponsorship Request Form. If you submit a sponsorship request form, in addition to your Contact Information, we will request your organization’s name, a brief description of your organization and its mission, the organization’s taxID number, the amount of the requested sponsorship, and information about the event (including the date, description, and number of expected attendees).

Event Registration. If you register for an event with us, we will collect your Contact Information and information about the event that you are attending.

Always Invite Request. If you are a donor family who would like to attend future Ceremony of Remembrance events, you may submit an Always Invite Request to be added to our “Always Invite” list. In addition to your Contact Information, we will also receive the name of the donor you are honoring.

Cookies and Similar Technologies. Our Site uses cookies and similar technologies. Please see the “Cookies and Similar Technologies” section of this Policy for more information.

Usage Data. We may automatically collect information from your browser or device, including the date and time of access; information about what pages you visit and how you navigate the Site; and your location, Internet Protocol (IP) address, device identifier, device type, operating system, and browser type.

Cookies and Similar Technologies

What are first and third-party cookies? A “cookie” is a small file created by a web server that can be stored on your device (if you allow) for use either during a particular browsing session (a “session” cookie) or a future browsing session (a “persistent” cookie). “Session” cookies are temporarily stored on your device and remain there until they expire at the end of your browsing session. “Persistent” cookies remain stored on your device until they expire or are deleted by you. Local shared objects (or “flash” cookies) are used to collect and store information about your preferences and navigation to, from, and on a website. First-party cookies are set by the website you are visiting, and they can only be read by that site. Third-party cookies are set by a party other than that website.

What are “similar technologies”? In addition to cookies, there are other data collection technologies, such as Internet tags, web beacons, pixels (clear gifs, pixel tags, and single-pixel gifs), and navigational data collection (log files, server logs, etc.) that can be used to collect data as you navigate through and interact with a website. For example, web beacons are tiny graphics with unique identifiers that are used to understand browsing activity. UTM codes are strings that can appear in a URL when you move from one web page or website to another. The string can represent information about your browsing, such as which advertisement, page, or publisher sent you to the receiving website.

What cookies and similar technologies are in use on the Site? The Site uses cookies and similar technologies to improve Site functionality, to measure and track how you interact with the Site, to perform analytics, to market to you, to track ad-driven activity, and to otherwise tailor our communications with you. For example:

Google Analytics. We use Google Analytics to collect and process statistical data about the number of people using the Site and to better understand how they find and use the Site. The data collected includes data related to your device/browser, your IP address, and on-site activities to measure and report statistics about user interactions. The information stored is reduced to a random identifier. Any data collected is used in accordance with this Policy and Google’s privacy policy. You may learn more about Google Analytics by visiting https://www.google.com/policies/privacy/partners/ and https://support.google.com/analytics/answer/6004245. You can learn more about Google’s restrictions on data use by visiting the Google Privacy Policy at: https://www.google.com/policies/privacy. To opt-out of Google Analytics, visit https://tools.google.com/dlpage/gaoptout and install the opt-out browser add-on feature. For more details, visit the “Google Analytics opt-out browser add-on” page located at https://support.google.com/analytics/answer/181881?hl=en.

Google Tag Manager. We use Google Tag Manager, which allows marketed website tags to be managed using an interface. The tool itself (which implements the tags) does not use cookies and does not register identifiable data. The tool causes other tags to be activated which may, for their part, register personal data under certain circumstances. Google Tag Manager does not access this information.  Google Tag Manager is subject to the Google Privacy Policy located at https://www.google.com/intl/en/policies/privacy.

Google Marketing. We use certain Google marketing technologies to track user activity on the Site and to serve personalized advertisements. Your browser is assigned a pseudonymous ID used to track the ads that have been served to your browser and to identify those on which you’ve clicked. The cookies enable Google and its partners to select and display ads based on your browsing behavior. For more information on how Google uses this information, you can visit https://policies.google.com/technologies/ads, https://support.google.com/displayvideo/answer/7621162, and https://support.google.com/google-ads/answer/7548399?hl=en. To block certain ads served by Google, please visit https://support.google.com/ads/answer/2662922. Google’s Privacy Policy is available at: https://www.google.com/policies/privacy.

Facebook. The Site uses certain Facebook technologies to serve relevant advertisements and to track Facebook ad-driven visitor activity on the Site. Facebook Connect also gives you the option to post information about your activities to your profile page to share with others within your network by using a single sign-in service to authenticate your identity. You may learn more about Facebook’s policies by visiting https://www.facebook.com/policy.php, and you can also find instructions for opting out of receiving advertisements via that page.

YouTube Services. We may use tracking technologies provided by YouTube and/or embed YouTube videos on our website. These tracking technologies enable us to understand and improve our marketing efforts, track the performance of any video content we have, and provide you with a more personalized experience. YouTube may collect information relating to your visit to our website, including the referring IP address, device, and pages you accessed on our website. Additional information on the purpose and scope of data collection and processing by YouTube can be found in YouTube/Google’s Privacy Policy: https://www.google.com/policies/privacy. By viewing any videos embedded on our website or as part of our Services, you consent to the disclosure of information to YouTube through its tracking technologies.

Other third-party technologies. Some third parties may use data collection technologies to collect information about you when you browse the Internet. We do not control these third parties’ technologies or how they may be used. If you have questions about targeted content, you should contact the responsible party directly or consult their privacy policies.

Choices about cookies and similar technologies. Most web browsers are set by default to accept cookies. If you do not wish to receive cookies, you may set your browser to refuse all or some types of cookies or to alert you when cookies are being stored. These settings may affect your enjoyment of the Site’s functionality. In addition, adjusting the cookie settings may not fully delete all of the cookies that have already been created. To delete them, you should review your web browser settings after you have changed your cookie settings. The links below provide additional information about how to disable cookies or manage the cookie settings:

• Google Chrome
• Firefox
• Microsoft Edge
• Safari for Mac and iPhone

You may learn more about internet advertising practices and related consumer resources at https://youradchoices.com/control, https://thenai.org/about-online-advertising/faq, and http://www.networkadvertising.org/choices.

How Do We Use Your Personal Information? To the extent permitted by applicable law, we may use your personal information for the purposes described below:

• Operate and improve our operations, services, and the Site
• Provide you with services, content, and functionality
• Improve our services and develop new services
• Honor our terms of service and contracts
• Manage, maintain, and improve our relationship with you and your use of the Site
• Communicate with you and respond to your feedback, requests, questions, or inquiries
• Register you for our email lists and send you periodic messages
• Engage with you on social media
• Enable you to share comments, questions, and answers
• Improve our marketing efforts, including by providing more tailored content and advertising
• Promote our services and contact you about other services
• Administer a promotion or survey
• Assess the success of marketing and advertising campaigns
• Ensure the privacy and security of our Site and services
• Maintain our databases and back-ups, including records of our communications with you
• Process donations, transactions, and payments
• Detect, investigate, and take steps to prevent fraud, illegal activities, and loss
• Support and improve the Site, including evaluations of functionality and features
• Analyze use of the Site and our services and prepare aggregate traffic information
• Recognize your device and remember your preferences and interactions
• Provide you with a more personal and interactive experience on the Site
• Determine and track user interests, trends, needs, and preferences
• General operational purposes, including procurement, financial and fiscal management, risk and compliance management, and reporting
• Facilitate corporate mergers, acquisitions, reorganizations, dissolutions, or other transactions
• Obtain and maintain insurance coverage and professional advice
• Accomplish any other purpose (a) that is related or ancillary to any of the purposes described in this Policy, (b) that is described to you when you provide the information or to which you consent, or (c) for which we have a legal basis under the law
• Comply with applicable laws
• Comply with civil, governmental, regulatory, and legal inquiries, investigations, warrants, orders, subpoenas, summonses, and other process
• Cooperate with law enforcement agencies
• Establish, exercise, and defend legal rights or claims
• Create, use, retain, and disclose de-identified or aggregated data
• Any other purpose with your consent

How Do We Share Your Personal Information? To the extent permitted by applicable law, we may share your personal information for the purposes described below. However, we will not share your mobile phone number with third parties or affiliates for marketing/promotional purposes. All stated categories in this Policy exclude text messaging originator opt-in data and consent, and this information will not be shared with any third parties.

Stories of Hope. If you decide to share your story with us via the Site, we will display on the Site your story and the information and photo that you share with us. The information will be visible to the public.

Affiliates. We may share your information with our subsidiaries and affiliates and with their respective officers, directors, employees, and agents.

Corporate Transactions. We may disclose your information in the event of a merger, divestiture, restructuring, reorganization, dissolution, or other sale or transfer of our organization or some or all of our assets. If we are acquired by or merged with another entity, your information may be transferred to the new owners.

 Legal Obligations. We disclose information in response to subpoenas, warrants, court orders or other legal process, or to comply with relevant laws. We may also share information in order to establish or exercise our legal rights or claims; to pursue claims; to defend against a legal claim; and to investigate, prevent, or take action regarding possible illegal activities, suspected fraud, safety of person or property, or a violation of contract.

Service Providers and Advisors. We share information with our contractors, service providers, insurers, and professional advisors (including accountants, attorneys, consultants, auditors, etc.) that need access to the information to provide services on our behalf or perform functions for us.

Third Parties.  We may ask if you would like us to share your information with third parties who are not described elsewhere in this Policy. We will only disclose your personal information in this context with your consent.

De-Identified and Aggregated Data. We may share with third parties aggregated information and data that does not identify any specific individual, such as groupings of demographic data or user preferences.

We will keep your information for as long as is necessary to fulfill the purposes for which it was collected, to comply with our business requirements and legal obligations, to resolve disputes, to protect our assets, to fulfill our organizational mission, and to enforce our agreements.

We may delete your information if we believe it is incomplete, inaccurate, or that our continued storage of it is contrary to our objectives or legal obligations. When we delete data, it will be removed from our active servers and databases, but it may remain in our archives when it is not practical or possible to delete it.

We may retain and use anonymous, de-identified, or aggregated information for as long as is permitted under applicable law.

We have adopted security measures that are designed to protect the personal information under our control. From time to time, we review our security procedures and consider new technologies and methods.

But, no security system is perfect, and no data transmission is 100% secure. Although we strive to protect your information, we cannot guarantee or warrant the security of any information transmitted to or from the Site. Your use of the Site is at your own risk. We cannot guarantee that your data will remain secure in all circumstances.

If a data breach compromises your personal information, we will notify you and any applicable regulator when we are required to do so by applicable law.

Please use the “Contact Us” details provided at the end of this Policy to exercise your rights and choices under this Policy. We honor requests when we are required to do so under applicable law.

Email Preferences. We may send you emails about our Site and services. If you do not want to continue receiving emails from us, you may opt-out by clicking the “unsubscribe” button at the bottom of our emails or by contacting us at communications@infinitelegacy.org. Please provide your name and contact information in your request, and we will respond to your request in accordance with applicable law.

Update Your Information. Our goal is to keep your information accurate, current, and complete. If any of your information changes, please let us know via the “Contact Us” details at the end of this Policy.

Complaints. If you believe your rights relating to your personal information have been violated, please contact us via the “Contact Us” details provided at the end of this Policy.

This Policy only applies to the Site. It does not apply to any websites, applications, or services provided by third parties.

The Site may include links to, and content from, third parties. These links are to external resources and third parties that have their own privacy policies and with which we may have no relationship. It may not always be clear to you which links are to external, third-party resources. If you click on a third-party link, you will be redirected away from the Site. You can check the URL to confirm whether you have left the Site.

We cannot and do not (1) guarantee the privacy or security practices of third parties or any content provided by third parties; (2) control third parties’ independent collection or use or your information; or (3) endorse any third-party information, products, services, applications, or websites.

Any information provided by you or collected from you by a third party will be governed by that party’s privacy policy and terms of use. You should review their privacy policy and terms of use carefully.

We are a nonprofit organization, and our Site and services are not directed to children under the age of 13. In addition, we do not knowingly collect information online from children under the age of 13. No one under the age of 13 may access, browse, or use the Site or provide any information to us online. If we learn that we have collected or received personal information from a child under the age of 13 online without a parent’s or legal guardian’s consent, we will take steps to stop collecting that information and to delete it. If you believe we have received any information from a child under the age of 13 online, please contact us using the “Contact Us” details provided at the end of this Policy.

For information about the Children’s Online Privacy Protection Act (COPPA), please visit the Federal Trade Commission’s website.

We may update this Policy from time to time. If we change this Policy, we will post the revised version on our Site. Any changes, updates, and modifications will be effective immediately upon posting. If we make material changes, we may also notify you through a notice on the Site’s homepage and/or we may send you an email regarding the updates.

You should read this Policy carefully before using the Site, and you should review it from time to time so that you are aware of its current terms. Your continued use of the Site after the “Last Updated” date will constitute your acceptance of and agreement to any changes and to our collection, use, and sharing of your information according to the then-current Policy. If you do not agree with this Policy, you should not use the Site.

For more information or if you have questions about this Policy, you may contact us using the information below:

            Mail:    Infinite Legacy
                         1730 Twin Springs Road, Suite 200
                         Baltimore, Maryland 21227

            Email: communications@infinitelegacy.org